Communication · sensory access · boundaries
Communicating with Staś.
Staś writes, types, signs and uses a speech-generating tablet. Give him time, speak to him directly and ask before making decisions about his body or access.
The useful five
Confirmed diagnoses
The diagnoses that matter here.
These are confirmed parts of Staś’s health, not guesses based on his behaviour. Treatment details remain private.
Bilateral vocal-fold agenesis
Staś was born without both vocal folds. He cannot make a physical voice, but he communicates in many other ways.
Read this pageAutism spectrum disorder
Autism shapes sensory processing, communication, change and regulation. Quiet, clarity and predictability help.
Read this pageAcquired partial hypopituitarism
A pituitary injury caused growth-hormone and gonadotropin deficiencies, affecting growth and development.
Read this pageNon-24-hour sleep–wake disorder
His diagnosed internal day is about 27 hours, so sleep, alertness and usable hours move around the clock.
Read this pageComplex post-traumatic stress disorder (C-PTSD)
Early trauma and years in foster care left survival responses that can show up as panic, freezing and difficulty feeling safe.
Read this pageGeneralized anxiety disorder (GAD)
Worry can spread across ordinary parts of life and become hard to switch off, even when he knows the fear is bigger than the situation.
Read this pageDepressive disorder
Depression can change energy, interest, concentration and the weight of ordinary tasks. It is not always visible from the outside.
Read this pageMore detail
Choose the section that matches the situation: conversation, sensory access, health, boundaries or planning.
Staś usually writes or types. In public, a speech-generating tablet reads his completed words aloud. The recorded voice was donated by a boy who later became his friend.
Ask one clear question at a time. Leave the pause open. Keep eye contact natural rather than staring at the screen. If the device is charging or unavailable, paper, phone, gestures and signs still exist.
Do not ask a companion to answer a question directed to Staś unless he has clearly handed it over.
Respect still comes first
It is not permission to diagnose, infantilise, test, rescue or speak over him. Good access is not a favour; it is how the actual person gets to participate.
Read the full storyPlanning something with him?
Send the format, timing, location, sensory conditions, contact person and what decisions need an answer. A parent, agent or manager can then prepare access without guessing.
Contact the team